Blog
Life can get crazy. Life can be exhilarating. It can be challenging, heartbreaking and hilarious. My life is all that and more.
Ponderings and Perspectives
I grew up reading books upon books. I loved being able to follow a story from the perspective of the narrator, to know what the characters were thinking in different situations. How any one character could interpret the same situation an entirely different way than another. Simply put, life is made up by the realities construed in your mind. Here are my realities.
Lessons Learned from the Gradual Deconstruction of My Health
Hard-won insight from a warrior mom, with a proven track record of getting knocked down. And getting back up.February 28th is Rare Disease Day, raising imperative awareness among policymakers and the public about rare disease, and its impact on patients' lives. What...
A Rare Relationship, A Rewarding Return
On paper, they would not work out together.Before Robbie, Davis had a proclivity for order. Too much so, we could argue. His cars, by the dozens, stretched across entire rooms, lined up by size and color. Every block tower built, a masterpiece to be revered; only...
Playing the Odds
Any parent of a child who exhibits an atypical development can likely pinpoint the exact moment and conjure up the exact emotions of when they realized their parenting life will have an uncommon narrative. They label it “The Beginning”. This is not ours. I’m letting...