“When life spirals, remember to twirl.”
I am a mom of two, raising a globally disabled daughter with an ultra-rare neuro-degenerative disease.
I am a mom deeply involved in research with our non-profit.
I am also so much more than that. I am optimism, incarnate.
I fail, and succeed, every single day. I laugh a lot. This is my journey.
About Me
Spinning positivity.
Hi! Thanks for visiting!
My life’s journey, a whirlwind of unexpected challenges and joyful triumphs, has inspired me to take what I love- writing, talking, creating- and use it to do what I love- inspire, motivate, and lift others up. “Cartwheels in Chaos” is not just my story but, hopefully, a beacon of positivity for anyone facing life’s unpredictable storms.
My hope for you is that “Cartwheels in Chaos”, a reflection of my heart, soul, and life-lived finding joy and laughter in the face of hardship, helps highlight the little, and big, things to treasure, or simply smile about, in day-to-day life.
Navigating the complexities of our family’s diverse needs, including caring for both a daughter with global disabilities AND celiac disease, and creative, thoughtful, boisterous older brother has taught me the importance of adaptability, humor, and unyielding optimism.
Happenings in My World
Media, Speaking Engagements & Appearances
Articles, interviews, and more. Just a preview of the things I have to say. 🙂
Podcast
Where we learn more about my story and some amazing change-makers whose positive and determined mindsets are changing the story as it is written.
Blog
All things me! My inner-most thoughts about experiencing a life like ours.
Latest News
Check out below to learn more about what’s happening in my world.
UnravelingRare Podcast
December 07, 2023
Unravel Bio’s “UnravelingRare” podcast is amplifying the voice of patients to align drug discovery and increase clinical impact. In this episode of UnravelingRare, Eleni Pitsiniaga speaks with me about Cure AP-4 and the challenges and benefits of tackling four disorders simultaneously.
CURE AP-4 ENGAGES UNRAVEL BIOSCIENCE IN PIONEERING AI-DRIVEN DRUG DISCOVERY FOR ULTRA-RARE CNS DISEASE
December 05, 2023
Partnership will generate clinical data from patients globally to accelerate identifying and developing therapeutics for AP-4 hereditary spastic paraplegias.
The Cure AP-4 Non-Profit
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